Low Grade Glioma Community Health Education Program
We are looking for Hispanic or Latino adults with a low-grade glioma brain tumor (grades 2 or 3) to join a new health education program. In this program, we will talk about what low-grade glioma and how genes affect it, how to get ready for a doctor visits, how to find help in your community, what are quality of life needs, and how to take part in research.
Why this Research Matters
There are many helpful tools and programs to support people with low-grade glioma. But not many are made for Hispanic or Latino people living with low-grade glioma. We hope this program, and your ideas, can help change that.
What to Expect
You will have up to 3 sessions via Zoom with a community health worker called a promotora. You will get a workbook with all the program materials. You might be asked to complete surveys or interviews to help us learn how well this program works. You can do the sessions, workbook, surveys, and interviews in English or Spanish.
Study Duration
You will have up to three Zoom sessions with a promotora. If you are asked to help evaluate the program, you may do two short surveys (about 20 minutes each) and one interview (about 45 minutes).
Who can Participate
You may be able to join this study, if you:
- Are 18 years old or older
- Live in the United States
- Identify as Hispanic or Latino
- Have been diagnosed with a low-grade glioma
- Were diagnosed at least one month ago
- Are one month past any surgical resection
- Have access to a laptop or tablet with reliable internet
Study ID
Protocol Number: 25-0220
Compensation Information
Meet the Team
Bethany M. Kwan, PhD, MSPH, FSBM
Principal Investigator