Learning More about the Progression of Stargardt Disease Type 1 in Adults
In this study we want to gather information about Stargardt Disease Type 1 (STGD1) and learn how it develops over time. We hope to use this information to help scientists come up with treatments or a cure for STGD1 in the future.
Why this Research Matters
This is an observational study, which means there is no drug or treatment given. We are doing tests to learn more about STGD1. If you join this study, you will attend 6 study visits over the course of about 2 years. At these visits we will ask you questions about your health and have you fill out surveys. We will also perform 6 different eye exams and use special machines to take pictures of your eyes. You will be paid $150 for each visit that you complete.
Who can Participate
You may be able to join this study if you have a genetically confirmed diagnosis of Stargardt Disease Type 1. You must be between 18 and 65 years old. There are other criteria that one of our study doctors will need to confirm. If you are interested in joining this study, reach out to us to learn more.
Study ID
Protocol Number: 24-0332
Compensation Information
Meet the Team
Principal Investigator