Improving Treatment for Pulmonary Arteriovenous Malformations
In this study we want to standardize the type of data we collect during a treatment called embolization for people with pulmonary arteriovenous malformations (PAVMs). We will then use this data to compare other treatment methods for PAVMs and learn how they impact patient health and healing.
Why this Research Matters
If you/your child join this study, you will not need any extra study visits. All study activities will happen during your routine doctor visits. Before your embolization procedure, we will use a special type of imaging test to look at your PAVM. At your checkup visits 1 month, 1 year, and 3 years after the procedure, we may use the same imaging test to see how well the embolization worked. We will also ask you to fill out a brief survey before and after your embolization procedure.
Who can Participate
You/your child may be able to join this study if a doctor has diagnosed you with a PAVM. Both children and adults can take part in this study. If you are interested, please reach out to our team. We will reach out to you and make sure you qualify.
Study ID
Protocol Number: 23-0755
Meet the Team
Principal Investigator