The purpose of the current study is to collect data on gaps in care in adults with congenital heart disease
Understanding the impact of gaps in care on healthcare utilization, long-term co-morbidities, and patient reported outcomes are the highest priority topics from patients, families and researchers. Additionally, knowledge about the factors associated with these gaps in care was a key factor in how to support patients to maintain lifelong care
Adults with congenital heart disease who are seen at Children's Hospital Colorado
Principal Investigator