In this study, we are building a registry of children and young adults who have had (or will have) a kidney transplant to help inform future research.
The main goal of this registry is to be able to improve the health outcomes and standard of healthcare for people that need a kidney transplant. A patient registry is a place where health information is gathered and stored for future research. If you or your child joins this study, you/their health records will be reviewed and data about your/their gender, race, and age will be collected. We will also collect data about your/their kidney transplant and health history. We may also ask you or your child to fill out online surveys about your/their health. You or your child won't need to come to any extra study visits to take part in this study.
You or your child may take part in this study if you are less than 26 years old. You or your child must have either had a kidney transplant or are scheduled to get a kidney transplant in the next 12 months to join this study.
Protocol Number: 16-2190
Principal Investigator