Utilizing PCORnet to support transition from pediatric to adult centered care and reduce gaps in recommended care in patients with congenital heart disease

Understanding the impact of gaps in care on healthcare utilization, long-term co-morbidities, and patient reported outcomes are the highest priority topics from patients, families and researchers. Additionally, knowledge about the factors associated with these gaps in care was a key factor in how to support patients to maintain lifelong care
MoreAdult
Adults with congenital heart disease who are seen at Children's Hospital Colorado
Observational
Childrens Hospital Colorado

Roni Jacobsen, MD
Protocol Number: 21-4668
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