Utilizing PCORnet to support transition from pediatric to adult centered care and reduce gaps in recommended care in patients with congenital heart disease

Study category: Pediatrics

Is this Study for You?

Let's Get Started!

Description

Understanding the impact of gaps in care on healthcare utilization, long-term co-morbidities, and patient reported outcomes are the highest priority topics from patients, families and researchers. Additionally, knowledge about the factors associated with these gaps in care was a key factor in how to support patients to maintain lifelong care

Details
Age

Adult

Eligibility

Adults with congenital heart disease who are seen at Children's Hospital Colorado

Type of Study

Observational

Locations

Childrens Hospital Colorado

Principal Investigator
Roni Jacobsen,  MD

Roni Jacobsen, MD

Study ID

Protocol Number: 21-4668

Categories

Is this Study for You?

Let's Get Started!

Not finding the right Study for you? Join ResearchMatch, a nation-wide registry connecting volunteers and researchers