Utilizing PCORnet to support transition from pediatric to adult centered care and reduce gaps in recommended care in patients with congenital heart disease
Description
Understanding the impact of gaps in care on healthcare utilization, long-term co-morbidities, and patient reported outcomes are the highest priority topics from patients, families and researchers. Additionally, knowledge about the factors associated with these gaps in care was a key factor in how to support patients to maintain lifelong care
MoreDetails
Age
Adult
Eligibility
Adults with congenital heart disease who are seen at Children's Hospital Colorado
Type of Study
Observational
Locations
Childrens Hospital Colorado
Principal Investigator
Roni Jacobsen, MD
Study ID
Protocol Number: 21-4668
Categories
Is this Study for You?
Not finding the right Study for you? Join ResearchMatch, a nation-wide registry connecting volunteers and researchers