Personalized experiences to inform improved communication for patients with Life Limiting Illness

For Aim 1, this study will test: 1) the effects on quality of communication between patient and nurse, as measured by the patient, 2) the effect of the intervention on patient’s overall biopsychosocial and spiritual well-being, as measured by the PROMIS 29 profile, and 3) the effects on patient’s psychosocial illness impact, as measured by the PROMIS psychosocial illness impact. For Aim 2, this study will test acceptability, feasibility, and usability of the narrative intervention from the perspectives of the key stakeholders—patients with serious illness and acute-care bedside nurses via 1) patient and nurse exit interviews, 2) field analysis of EHR interface use, and 3) end-user usability surveys of the nurses.
MoreAdult
Patients will be age 18 or older, able to speak/read English, capable of giving informed consent, and be diagnosed with at least one serious illness. The operational definition of serious illness for this study will include the following: 1) New York Heart Class III or IV heart failure, and/or 2) dialysis dependent renal failure.
Patients will be age 18 or older, able to speak/read English, capable of giving informed consent, and be diagnosed with at least one serious illness. The operational definition of serious illness for this study will include the following: 1) New York Heart Class III or IV heart failure, and/or 2) dialysis dependent renal failure.
Supportive Care
University of Colorado Hospital

Heather Coats, NP
Protocol Number: 19-1874
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