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Personalized experiences to inform improved communication for patients with Life Limiting Illness

Study category: Heart and Blood Conditions

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Description

For Aim 1, this study will test: 1) the effects on quality of communication between patient and nurse, as measured by the patient, 2) the effect of the intervention on patient’s overall biopsychosocial and spiritual well-being, as measured by the PROMIS 29 profile, and 3) the effects on patient’s psychosocial illness impact, as measured by the PROMIS psychosocial illness impact. For Aim 2, this study will test acceptability, feasibility, and usability of the narrative intervention from the perspectives of the key stakeholders—patients with serious illness and acute-care bedside nurses via 1) patient and nurse exit interviews, 2) field analysis of EHR interface use, and 3) end-user usability surveys of the nurses.

Details
Age

Adult

Eligibility

Patients will be age 18 or older, able to speak/read English, capable of giving informed consent, and be diagnosed with at least one serious illness. The operational definition of serious illness for this study will include the following: 1) New York Heart Class III or IV heart failure, and/or 2) dialysis dependent renal failure.

Detailed Eligibility: Patients will be age 18 or older, able to speak/read English, capable of giving informed consent, and be diagnosed with at least one serious illness. The operational definition of serious illness for this study will include the following: 1) New York Heart Class III or IV heart failure, and/or 2) dialysis dependent renal failure.

Phase

Feasibility - Exploratory studies, involving very limited human exposure, with no therapeutic or diagnostic intent.

Type of Study

Supportive Care

Location

University of Colorado Hospital

Principal Investigator
Heather Coats,  NP

Heather Coats, NP

Study ID

Protocol Number: 19-1874

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